2007
-Our long awaited baby was born premature and was in NICU for 9 days. The nurse told you that her right feet has mild clubfeet.You saw her right feet was in black blue condition like a blood clot..
-we were scolded by one of the pediatrics specialist while waiting for orthopedic to come and explain on her feet condition...she scolded us for being in the ward after visitation hours but we stay calm since we wanted to know details on her feet. The young orthopedics came and told me that her feet can be corrected by using splint, or casting or surgery.
-Dania's 2nd day of life, she was brought to Jabatan Carakerja for the splint. The progress was so unconvincing.
-On her 2nd week of life, we decided to let the orthopedic cast her feet.
-In HTJ, the Hospital Attendant did the casting..hmm..very much unconvincing..
- We transferred her case to HKL where we heard the doctors can correct her feet. God Knows!!
- 1st surgery was done in July, and another one in October...
the casting looks so Ugly, Malaysian made...'Surgery does not cure clubfoot. Although the foot looks better after surgery, children will experience stiffness, weakness and pain, and during adolescence this pain often becomes crippling. Dr. Ponseti developed this method to treat clubfoot as an alternative to surgery after his research revealed very poor long term results among surgical patients. '
2008
-She was free from casting but she were asked to use the stupid splint. But the 2 doctors opinioned that she need another surgery, yes the 3rd one. They said her feet is so rigid...Cant do much with the casting...From their experience, this is the best solution..But this is what happened..
-I did asked whether the doctor know any hospital practiced Ponseti Method. This MO claimed in HKL, they used Ponseti method. (I've forwarded this claim to Dr Ponseti and he is very upset)
-I cant think so much to help her ..at that time i do not know that i had brain tumor. most of the time I had a severe headache and I'm addicted to panadol..fainted in the office, was hospitalised for a month in SJMC..
-I prayed in front of Kaabah, Pintu Mustalzam, Hijd Ismail and when kissing Hajr Aswad, that Dania would skip her 3rd surgery schedule in mid April, and her feet can be corrected without anymore surgery. Allah has granted my wishes.
- Went to Bangkok every week starting May. Seeing Dr Amnuay Jirasirikul at Bumrungrad Hospital..4 times casting, he manages to keep her feet corrected WITHOUT surgery..
The casting looks so professional, Bangkok made...- Dania in Ponseti Shoe which cost us RM1,400 which we bought from Iowa, US.
My dream
- to help parents' children with clubfoot problem; to have their children get treated with REAL Ponseti Method.
-Need to increase awareness of Ponseti Method not the modified one among Malaysian Orthopedics..
-Met Marina Mahathir today, she encouraged me to give a talk to this parents...how i go about this?hmmm
How many of you willing to see your own daughter's feet were casted at most of her time while other babies were swimming, crawling, walking happily?
How many of you had accompanied your daughter to the OT with ONE hope for her feet to be corrected but the doctors had failed?2 times..:(
At her 14 months age, she supposed to cruise like any other normal baby, but she cant ; yet; I think she need more time to realise that she has two feet. All this while she only saw her left feet. How’s that?
How many of you facing the same problem as I had?3 miscarriages, had incompetence cervix, 4th pregnancy with many episodes of bleeding, baby born premature and with clubfoot, diagnosed with benign brain tumor had 2 surgeries involving brain, and not to include parent's problems and what not...so how many of you can get through on what I've been through?
Not to seek for any sympathy...but this is what had happened to me...Sick with incompetence skill of the doctors BUT still admiring my gynecologist and also neurosurgeon..
Sound offensive? This blog is not meant to you for visit and you can go to hell!!
Disclaimer
If this blog sound offensive to the readers, the readers should not visit this blog anymore.This blog has no intention to seek for sympathy, to create riot or strike or harm to this peaceful country..This blog tells you on the author's expression of her life...
- to help parents' children with clubfoot problem; to have their children get treated with REAL Ponseti Method.
-Need to increase awareness of Ponseti Method not the modified one among Malaysian Orthopedics..
-Met Marina Mahathir today, she encouraged me to give a talk to this parents...how i go about this?hmmm
How many of you willing to see your own daughter's feet were casted at most of her time while other babies were swimming, crawling, walking happily?
How many of you had accompanied your daughter to the OT with ONE hope for her feet to be corrected but the doctors had failed?2 times..:(
At her 14 months age, she supposed to cruise like any other normal baby, but she cant ; yet; I think she need more time to realise that she has two feet. All this while she only saw her left feet. How’s that?
How many of you facing the same problem as I had?3 miscarriages, had incompetence cervix, 4th pregnancy with many episodes of bleeding, baby born premature and with clubfoot, diagnosed with benign brain tumor had 2 surgeries involving brain, and not to include parent's problems and what not...so how many of you can get through on what I've been through?
Not to seek for any sympathy...but this is what had happened to me...Sick with incompetence skill of the doctors BUT still admiring my gynecologist and also neurosurgeon..
Sound offensive? This blog is not meant to you for visit and you can go to hell!!
Disclaimer
If this blog sound offensive to the readers, the readers should not visit this blog anymore.This blog has no intention to seek for sympathy, to create riot or strike or harm to this peaceful country..This blog tells you on the author's expression of her life...
